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Pediatrics

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Articles

Andresen E, Nanda U, Toce S. “Research on the Quality of Death of Children.” Mapi Research Inst.: Quality of Life Newsletter, 28: January, 2002.
(SSM Cardinal Glennon Children’s Hospital)

Andresen EM, Seecharan GA, Toce SS. “Provider Perceptions of Child Deaths.” Archives of Pediatrics & Adolescent Medicine, 158 (5):430-5, May 2004.
(SSM Cardinal Glennon Children’s Hospital)

Children’s Hospital & Regional Medical Center. “Pediatric Palliative Care Project: Educational Seminar.” Linkages, December 1999/January 2000.
(Children’s Hospital and Regional Medical Center)

Children’s Hospital & Regional Medical Center “Pediatric Palliative Care Project,” Linkages, March/April 2000.
(Children’s Hospital and Regional Medical Center)

Children’s Hospital & Regional Medical Center “Pediatric Palliative Care Project,” Linkages, June/July 2000.
(Children’s Hospital and Regional Medical Center)

Children’s Hospital & Regional Medical Center “Pediatric Palliative Care Project,” Linkages, September/October 2000.
(Children’s Hospital and Regional Medical Center)

Children’s Hospital & Regional Medical Center. “Pediatric Palliative Care Project: Enrollments Will End, Consultations Continue.” Linkages, March/April 2001, www.cshcn.org/news/Linkages.cfm
(Children’s Hospital and Regional Medical Center)

Codden P, Toce S. “Applying Palliative Care Principles to Children at the End of Life,” Care of the Dying: Supportive Voice, Fall 2000.
(SSM Cardinal Glennon Children’s Hospital)

Cohen LM. “Assisting Parental Affirmation,” American Journal of Orthopsychiatry,
48:727-731, 1978.
(Baystate Medical Center)

Cohen LM. “Perinatal and Sudden Infant Deaths: Foci of Mourning.” Text of Human Development, Special Learning Center, NY, 1980.
(Baystate Medical Center)

Collins MA and Carron Sr J. “Letting Go, Saying Good-Bye: Grieving the Death of a Child,” Care of the Dying: Supportive Voice, Spring 2001.
(SSM Cardinal Glennon Children’s Hospital)

“Creating a New Policy Framework for Pediatric Palliative Care”. State Initiatives in End-of-Life Care 16, September, 2002.
(Children’s Hospital and Regional Medical Center)

“Enhancing the Quality of Life for Dying Children,” Children’s Hospitals Today, Fall, 2001.
(Children’s Hospital and Regional Medical Center)

Niermeyer S, Kattwinkel J, Van Reempts P, et.al. “International Guidelines for Neonatal Resuscitation: An Excerpt from the Guidelines 2000 for Cardiopulmonary Resuscitation and Emergency Cardiovascular Care: International Consensus on Science.” Pediatrics 106(3), September 2000, e29. http://pediatrics.aappublications.org/cgi/content/full/106/3/e29
(SSM Cardinal Glennon Children’s Hospital)

Niermeyer S, Kattwinkel J, Van Reempts P, et.al. “Neonatal Resuscitation.” Pediatrics 102(suppl l): 1343-57, September 2000, e29.
(SSM Cardinal Glennon Children’s Hospital)

“Paying for Care Needed by Children with Life-Limiting Conditions.” State Initiatives in End-of-Life Care 15 (2): 2002.

“Pediatric Palliative Care Project.” Children’s In House October 25, 1999.
(Children’s Hospital and Regional Medical Center)

Seecharan G, Andresen EM, Norris K, Toce SS. “Parents’ Assessment of Quality of Care and Grief Following a Child’s Death.” Archives of Pediatrics & Adolescent Medicine, 2004; 158:515-520.

Commentary: Sandler I, Kennedy C, Shapiro E. “Parental Grief and Palliative Care Require Attention.” Archives of Pediatrics & Adolescent Medicine, 2004; 158:590-591.
(SSM Cardinal Glennon Children’s Hospital)

Toce S. “Ethical Decision Making in the Delivery Room,” Focus on Pediatrics, Spring 2001
(SSM Cardinal Glennon Children’s Hospital)

Toce SS. “Ethical Decision Making at End of Life,” Focus on Pediatrics, Fall, 1998.
(SSM Cardinal Glennon Children’s Hospital)

Toce SS. “Perinatal Loss: Gone but Not Forgotten,” The Perinatal Times, 14:3-4, 1999.
(SSM Cardinal Glennon Children’s Hospital)

Toce SS. “Ethical Decision Making for the Child with a Life-Limiting Condition,” Care of the Dying: Supportive Voice, 7(4): 6-8, 2001.
(SSM Cardinal Glennon Children’s Hospital)

Toce SS. “The Roles of Data Collection, Evaluation, and Research in Pediatric Palliative Care.” Care of the Dying: Supportive Voice, Winter/Spring 2002.
(SSM Cardinal Glennon Children’s Hospital)

Toce SS. “NRP 2000: The Millennium Edition.” The Perinatal Times, Spring 2001.
(SSM Cardinal Glennon Children’s Hospital)

Toce SS and Collins MA. “The FOOTPRINTS SSM Model of Pediatric Palliative Care.” Journal of Palliative Medicine 6(6):989-1000, 2004.
(SSM Cardinal Glennon Children’s Hospital)

 

Books
Hilden J, and Tobin D. Shelter from the Storm: Caring for a Child with a Life-Threatening Condition. Cambridge: Perseus Publishing, 2003.
(Children’s Hospital and Regional Medical Center)

Perloff J. and Rizzo V. Conversations from the Heart: Resources for Talking with Children about a Parent’s Serious Illness. Life Institute www.thelifeinstitute.org
(Children’s Hospital and Regional Medical Center)

 

Book Chapters
Toce SS, Leuthner SR, Dokken DL, Carter B, Catlin A. “Applying Palliative Care Principles to the Care of High Risk Newborns.” In Palliative Care for Infants, Children and Adolescents: A Practical Handbook, Carter B and Levetown M (eds). Baltimore: Johns Hopkins University Press, 2004.
(SSM Cardinal Glennon Children’s Hospital)

Toce SS, Leuthner SR, Dokken DL, Carter B, Catlin A. “Perinatal Loss.” In Palliative Care for Infants, Children and Adolescents: A Practical Handbook, Carter B and Levetown M (eds). Baltimore: Johns Hopkins University Press, 2004.
(SSM Cardinal Glennon Children’s Hospital)

 

News Coverage
“Second Opinion: End-of-Life Care for Children,” Washington Post online discussion with Joanne M. Hilden, June 21, 2001.
(Children’s Hospital and Regional Medical Center)

Smith C. “Here’s Help in Making the Tough Choices,” Seattle Post-Intelligencer, September 11, 2000.
(Children’s Hospital and Regional Medical Center)

“Study Shows New Approach Helps Children with Life-Threatening Illnesses,” Regence Online News, October 5, 2001.
(Children’s Hospital and Regional Medical Center)

 

Reports
Himelstein BP, Friebert S, Lewandowski J, Toce S, et.al. “Statement to the Institute of Medicine Committee on Children Who Die and Their Families.” From the Pediatric Special Interest Group, representing the American Academy of Hospice and Palliative Medicine. September 2001.
(SSM Cardinal Glennon Children’s Hospital)

Toce SS. “DNR, Futility, and Quality of Life: Decisions Regarding Withholding and Withdrawing Life-Sustaining Medical Treatment.” Children’s International Project on Palliative/Hospice Services (CHIPPS), pp 28-30, Compendium of Pediatric Palliative Care, National Hospice and Palliative Care Organization, Alexandria, 2000.
(SSM Cardinal Glennon Children’s Hospital)

Toce SS. “Applying Hospice Principles to the Care of the High Risk Newborn” Children’s International Project on Palliative/Hospice Services (CHIPPS), pp 14-21, Compendium of Pediatric Palliative Care, National Hospice and Palliative Care Organization, Alexandria, 2000.
(SSM Cardinal Glennon Children’s Hospital)

 

Bibliographies
From the ALS Workgroup:

  • Children’s Bibliography
    (Let's Talk About) Feeling Angry (Sad, Frustrated etc.) [series on feelings for ages 3-6] by Maggie Smith, Scholastic Trade
  • The Fall of Freddie the Leaf [ages 4-8] by Leo F. Buscaglia
    Holt Rinehart Winston; ISBN: 0805010645
  • Lifetimes: The Beautiful Way to Explain Death to Children [ages 4-8]
    by Bryan Mellonie
    Bantam Doubleday Dell Pub (Trd Pap)
    ISBN: 0553344021
  • I'll Always Love You [ages 4-8]
    by Hans Wilhelm
    Crown Pub; ISBN: 0517572656
  • Sad Isn't Bad: A Good-Grief Guidebook for Kids Dealing With Loss [ages 4-8] by Michaelene Mundy
    Abbey Press; ISBN: 0870293214
  • Nana Upstairs, Nana Downstairs [ages 4-8] by Tomie De Paola
    Puffin; ISBN: 0698118367
  • How It Feels When A Parent Dies [ages 4-8] By Jill Krementz Alfred A. Knopf, New York ISBN: 0394758544

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Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families.