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HIV/AIDS

NOTE: Some listings include a link to a related Promoting Excellence demonstration project.

Also see:
· HIV Care: An Agenda for Change: HIV/AIDS Workgroup Recommendations to the Field
· Financial Implications of Promoting Excellence in End-of-Life Care
· Clinical Guide on Supportive and Palliative Care for People with HIV/AIDS


Articles
Ammassari A, et al. "Self-Reported Symptoms and Medication Side Effects Influence Adherence to Highly Active Antiretroviral Therapy in Persons with HIV Infection." Journal of Acquired Immune Deficiency Syndrome, 28: 445-449, 2001.

Arnes PJ and Higginson IJ. “What Constitutes High Quality HIV/AIDS Palliative Care?” Journal of Palliative Care, 15: 5-12, 1999.

Boland D and Sims S. "Family Care Giving at Home as a Solitary Journey." Images: Journal of Nursing Scholarship, 28(1): 55-58, 1996

Cunningham WE, et al. "Constitutional Symptoms and Health-Related Quality of Life in Patients with Symptomatic HIV Disease." The American Journal of Medicine, 104(2): 129-136, 1998.

Curtis JR, Patrick DL, Caldwell ES, Collier AC . "Why Don't Patients and Physicians Talk About End-of-Life Care? Barriers to Communication for Patients with Acquired Immunodeficiency Syndrome and Their Primary Care Clinicians." Archives of Internal Medicine, 160(11): 1690-1696, 2000.

Justice AC, Chang CH, Rabeneck L, Zackin R. "Clinical Importance of Provider-Reported HIV Symptoms Compared with Patient-Report." Medical Care Research and Review, 39(4): 397-408, 2001.

Kilbourne AM, et al. "Response to Symptoms Among a U.S. National Probability Sample of Adults Infected with Human Immunodeficiency Virus." Medical Care Research and Review, 59(1): 36-58, 2002.

Lorenz KA, et al. "Associations of Symptoms and Health-Related Quality of Life: Findings from a national study of persons with HIV infection." Annals of Internal Medicine, 134 (9) (Suppl-Part 2): 854-860, 2001.

Mathews WC, et al. "National Estimates of HIV-Related Symptom Prevalence from HIV Cost and Services Utilization Study." Medical Care Research and Review, 38(7): 750-762, 2000.

O’Neill JF and Alexander CS. “Palliative Medicine and HIV/AIDS.” Primary Care, 24: 607-615, 1997.

O'Neill JF and Marconi K. "Underserved Populations, Resource-Poor Settings, and HIV: Innovative Palliative Care Projects." Journal of Palliative Medicine, 6(3): 457-459, 2003.

O’Neill, JF Marconi K, Suprepruik A and Blum N. “Improving HIV/AIDS Services through Palliative Care: An HRSA Perspective.” Journal of Urban, 77: 244-254, 2000.

Pace JC and Stables JL. “Correlates of Spiritual Well-being in Terminally Ill Persons with AIDS and Terminally Ill Persons with Cancer.” Journal of the Association of Nurses, 8: 31-42, 1997.

"Providing HIV/AIDS Care in a Changing Environment: Spirituality and Treatment of People Living with HIV Disease." HRSA Care Action, U.S. Department of Health and Human Services, March 2003.

Selwyn PA, et al. "Palliative Care for AIDS at a Large Urban Teaching Hospital: Program Description and Preliminary Outcomes." Journal of Palliative Medicine, 6(3): 475-487, 2003.

Selwyn PA and Arnold R. “From Fate to Tragedy: The Changing Meanings of Life, Death, and AIDS.” Annals of Internal Medicine, 129: 899-902.

Selwyn PA and Forstein M. “Overcoming the False Dichotomy of Curative vs Palliative Care for Late-Stage HIV/AIDS.” JAMA- Journal of American Medical Association 290(6): 806-814, 2003.

Sims S, Boland D, O'Neill C. "Decision-Making in Home Health Care." Western Journal of Nursing Research, 14: 186-200, 1992.

 

Manuals
Module 4: Palliative Care: A Comprehensive Guide for the Care of People with HIV Disease. Mount Sinai Hospital and Casey House. Health Canada, 1995.

Resource Manual for Providing Hospice Care to People Living With Aids. National Hospice and Palliative Care Organization: Alexandria, Va., 1996.

A Clinical Guide to Supportive & Palliative Care for HIV/AIDS. O'Neill JF, Selwyn PA, and Schietinger H (eds). Washington, D.C.: Health Resources and Services Administration, 2003.

Palliative Care for People with HIV/AIDS: A Curriculum and Teaching Resource for Medical Educators. A Project of the Northwest AIDS Education & Training Center. The Center for Palliative Care Education, University of Washington, Seattle, WA. 2003. www.uwpallcare.org (Also available on CD-ROM)

 

Websites

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Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families.