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NOTE: Some listings include a link to a related Promoting Excellence demonstration project.

See also Completing the Continuum of ALS Care, Appendix B
* Psychosocial Care, Bereavement, Spirituality
* Caregivers and Quality of Life


Seecharan G, Andresen EM, Norris K, Toce SS. “Parents’ Assessment of Quality of Care and Grief Following a Child’s Death.” Archives of Pediatrics & Adolescent Medicine, 158: 515-520, 2004.
(SMM Cardinal Glennon Children’s Hospital)

Commentary: Sandler I, Kennedy C, Shapiro E. “Parental Grief and Palliative Care Require Attention.” Archives of Pediatrics & Adolescent Medicine, 158: 590-591, 2004.

Taylor P. “Grief and Hospice Care for the Correctional Community: Training, Nurturing, and Mentoring of Staff.” Journal of Correctional Health Care: Special Issue: End-of-Life Care in Corrections, 9(2): Summer, 2002.
(Volunteers of American, Inc.)

Toce SS. “Perinatal Loss: Gone but Not Forgotten.” The Perinatal Times, 14: 3-4, 1999.
(SMM Cardinal Glennon Children’s Hospital)


Toce SS, Leuthner SR, Dokken DL, Carter B, Catlin A. “Perinatal Loss.” In Palliative Care for Infants, Children and Adolescents: A Practical Handbook, Carter B and Levetown M (eds.). Baltimore: Johns Hopkins University Press, 2004.
(SMM Cardinal Glennon Children’s Hospital)

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Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families.