Promoting Excellence : Huntington's Disease Recommendations to the Field : HD Workgroup Members

Richard Dubinsky, M.D. (Chair)
Associate Professor
Department of Neurology
University of Kansas Medical Center
Kansas City, Kan.

Tetsuo Ashizawa, M.D.
Professor and Chair
Department of Neurology
The University of Texas Medical Branch
Galveston, Texas

H. Taylor Butler, LCSW
HDSA Center of Excellence
Emory University School of Medicine
Wesley Woods Health Center
Atlanta, Ga.

Ira Byock, M.D.
Promoting Excellence in End-of-Life Care
Missoula, Mont.

Carol Maier Clerico, O.T./L.
Therapy Education Coordinator
University of Virginia Health System
Huntington's Disease Center of Excellence
Charlottesville, Va.

Peter G. Como, Ph.D.
Co-Director, HDSA Center of Excellence
University of Rochester Medical Center
Rochester, N.Y.

D. Brookes Cowan, Ph.D., M.S.W.
Department of Sociology
University of Vermont
Burlington, Vt.

Charles Diggs, Ph.D. (ASHA)
Director, State and Consumer Advocacy
American Speech-Language-Hearing Association
Rockville, Md.

Barbara Heiman, M.S.W./LISW
HDSA Center of Excellence
The Ohio State University
Columbus, Ohio

Bruce Jennings, M.A.
Senior Research Scholar
The Hastings Center
Garrison, N.Y.

Marilee Monnot, Ph.D.
Assistant Professor
Department of Neurology
Oklahoma University
Health Sciences Center
Oklahoma City, Okla.

Martha Nance, M.D.
Director of HDSA Center of Excellence
Hennepin County Medical Center
Minneapolis, Minn.

Frances Diaz Saldaņa
Fountain Valley, Calif.

Kathleen Shannon, M.D.
Associate Professor
Department of Neurological Sciences
Rush Medical College
Senior Attending Physician
Rush-St. Luke's Presbyterian Medical Center
Chicago, Ill.

Teresa Tempkin R.N.C., M.S.N., A.N.P.
HDSA Center of Excellence
University of California,
Davis Medical Center
Department of Neurology
Sacramento, Calif.

Susan Jo Bumagin, M.Ed.
Peer Workgroup Director

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Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. Visit for more resources.

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