The Promoting Excellence Huntington's Disease Peer Workgroup calls on caregivers
Continually reassess and strive to improve levels of comfort. Comfort is
more than just alleviation of pain or suffering, encompassing security
and coping with stress and the feeling of contentment. As HD advances, stress
imparted by the progressive loss of abilities and independence leads to great
discomfort across many aspects of a person's life.
- Pay heightened attention
to the safety needs of people with HD.
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Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. Visit PromotingExcellence.org for more resources.