Promoting Excellence : Huntington's Disease Recommendations to the Field : Researchers

Despite remarkable research being conducted that is aimed at a cure and reducing symptoms, more encompassing research is needed to better understand the impact of the disease on the lives of patients and their families, appropriate settings to care for patients and the role of clinicians in providing care.

The Promoting Excellence Huntington's Disease Peer Workgroup recommends that the National Institutes of Health (NIH) and other researchers:

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Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. Visit PromotingExcellence.org for more resources.

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