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Huntington's Disease Workgroup Membership


Richard Dubinsky, M.D.
Department of Neurology
University of Kansas Medical Center
3901 Rainbow Blvd.
Kansas City, KS 66160
Phone: (913) 588-6984
[email protected]

Tetsuo Ashizawa, M.D.
Professor and Chairman
Department of Neurology
The University of Texas Medical Branch
Galveston, TX
Gary Barg
Editor in Chief, Today's Caregiver
Caregiver Media Group
Hollywood, FL
H. Taylor Butler, LCSW
Emory University School of Medicine
Wesley Woods Health Center
Atlanta, GA
Carol Clerico
Therapy Educator Coordinator
University of Virginia Health System
Charlottesville, VA
Peter Como, Ph.D.
Co-Director of HDSA Center of Excellence
University of Rochester Medical Center
Rochester, NY
Brookes D. Cowan, Ph.D. MSW
Department of Sociology
University of Vermont
Burlington, VT
Charles Diggs, Ph.D.
Director, State and Consumer Advocacy
American Speech-Language-Hearing Association
Rockville, MD
Barbara Heiman, MSW/LISW
HDSA Center of Excellence
Ohio State University
Columbus, OH
Bruce Jennings
Senior Research Scholar
The Hastings Center
Garrison, NY
Marilee Monnot, Ph.D.
Assistant Professor
Department of Neurology
Oklahoma University Health Sciences Ctr
Oklahoma City, OK
Martha Nance, M.D.
Director of HDSA Center of Excellence
Hennepin County Medical Center
Minneapolis, MN
Frances Saldana
Fountain Valley, CA
Kathleen Shannon, M.D.
Associate Professor
Rush-Presbyterian-St. Luke's Medical Center
Chicago, IL
Teresa Tempkin, RNC, MSN, ANP
HDSA Center of Excellence
UC Davis Medical Center
Sacramento, CA

Huntington's Disease Society of America

Barbara Boyle
National Executive Director/CEO
Huntington's Disease Society of America
New York, NY
Debra Lovecky
Director, Communications, Education and Center Programs
Huntington's Disease Society of America
New York, NY

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Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families.