Promoting Excellence : HIV Care: An Agenda for Change : Appendix D

General References

Ammassari A, et al. "Self-reported symptoms and medication side effects influence adherence to highly active antiretroviral therapy in persons with HIV infection." JAIDS, 28: 445-449, 2001.

Cunningham WE, et al. "Constitutional symptoms and health-related quality of life in patients with symptomatic HIV disease." The American Journal of Medicine, 104(2): 129-136, 1998.

Curtis JR, Patrick DL, Caldwell ES, Collier AC . "Why don't patients and physicians talk about end-of-life care? Barriers to communication for patients with acquired immunodeficiency syndrome and their primary care clinicians." Archives of Internal Medicine, 160(11): 1690-1696, 2000.

Justice AC, Chang CH, Rabeneck L, and Zackin R. "Clinical importance of provider-reported HIV symptoms compared with patient-report." Medical Care, 39(4): 397-408, 2001.

Kilbourne AM, et al. "Response to symptoms among a U.S. national probability sample of adults infected with human immunodeficiency virus." Medical Care Research and Review, 59(1): 36-58, 2002.

Lorenz KA, et al. "Associations of symptoms and health-related quality of life: Findings from a national study of persons with HIV infection." Annals of Internal Medicine, 134 (9-part 2) Supp: 854-860, 2001.

Mathews WC, et al. "National estimates of HIV-related symptom prevalence from HIV cost and services utilization study." Medical Care, 38(7): 750-762, 2000.

O'Neill JF, Selwyn PA, and Schietinger H (eds.). A Clinical Guide to Supportive & Palliative Care for HIV/AIDS, 2003 edition. Health Resources and Services Administration: Washington, D.C., 2003.

O'Neill JF, Marconi K. "Underserved Populations, Resource-Poor Settings, and HIV: Innovative Palliative Care Projects." Journal of Palliative Medicine. 6(3): 457-459, 2003.

"Providing HIV/AIDS care in a changing environment: spirituality and treatment of people living with HIV disease." HRSA Care Action, March 2003.

Report prepared for the Bureau of HIV/AIDS, Health Resources and Services Administration. Prepared by BM Cohen and E Salsberg. Center for Health Workforce Studies, August 2002.

Selwyn PA, et al. "Palliative Care for AIDS at a large urban teaching hospital: program description and preliminary outcomes." Journal of Palliative Medicine, 6(3): 475-487, 2003.

Caregiver References

National Hospice and Palliative Care Organization. Resource Manual for Providing Hospice Care to People Living With Aids. National Hospice and Palliative Care Organization: Alexandria, Va., 1996.

Mount Sinai Hospital and Casey House. Module 4: Palliative Care, A Comprehensive Guide for the Care of People With HIV Disease. Health Canada, 1995.

Sims S, Boland D and O'Neill C. "Decision-making in home health care." Western Journal of Nursing Research, 14: 186-200, 1992.

Boland D and Sims S. "Family care giving at home as a solitary journey." Images: Journal of Nursing Scholarship, 28(1): 55-58, 1996.

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Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. Visit for more resources.

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