Promoting Excellence : ESRD Table of Contents : Related Articles not Specific to ESRD

Advance Planning/CPR/DNR Orders

Diem SJ, Lantos JD, Tulsky JA. Cardiopulmonary Resuscitation on Television: Miracles and Misinformation. N Engl J Med 1996; 334: 1578-1582.

Dunn PM, Levinson W. Discussing Futility with Patients and Families. J Gen Intern Med 1996; 11(11): 689-693.

Ebell MH, Becker LA, Barry HC, Hagen M. Survival after In-Hospital Cardiopulmonary Resuscitation: A Meta-Analysis. J Gen Intern Med 1998; 13: 805-816.

Gesensway D. Joanne Lynn: First Steps to Improve Care for the Dying. ACP-AISM Observer, Feb. 1996.

Greco PJ, Schulman KA, Lavizzo-Mourey R, Hansen-Flaschen J. The Patient Self-Determination Act and the Future of Advance Directives. Ann Intern Med 1991; 115: 639-643.

Meisel A, Snyder L, Quill T, for ACP-ASIM End-of-Life Care Consensus Panel. Seven Legal Barriers to End-of-Life Care: Myths, Realities, and Grains of Truth. JAMA 2000; 284(19): 2495-2501.

Molloy DW, et al. Systematic Implementation of an Advance Directive Program in Nursing Homes: A Randomized Controlled Trial. JAMA 2000; 283,11: 1437-1444.

Moss AH. Informing Patients about Cardiopulmonary Resuscitation when the Risks Outweigh the Benefits. J Gen Intern Med 1989; 4: 349-355.

Sabatino CP. Survey of State EMS DNR Laws and Protocols. J Law Med Ethics 1999; 27: 297-315.

Singer PA, Martin DK, Lavery JV, Thiel EC, Kelner M, Mendelssohn DC. Reconceptualizing Advance Care Planning from the Patients' Perspective. Arch Int Med 1998; 158: 879-884.

Snyder JD, Sulmasy DP. Physician-Assisted Suicide. For the Ethics and Human Rights Committee, ACP-ASIM. Ann Intern Med 2001; 135(3): 209-216.

Strauss PJ. End-of-Life Health Care Choices: Best Interests Rule Should Govern. New York Law Journal, March 29, 2001.

Tulsky JA, Fischer GS, Rose MR, Arnold RM. Opening the Black Box: How do Physicians Communicate About Advance Directives? Ann Intern Med 1998; 129(6): 441-449.

Communication/Education

Anderson RM, Funnell MM. Compliance and Adherence are Dysfunctional Concepts in Diabetes Care. Diabetes Educ. 2000 Jul-Aug; 26: 597-604.

Anderson RM, Funnell MM. Theory is the Cart, Vision is the Horse: Reflections on Research in Diabetes Patient Education. Diabetes Educ. 1999 Nov-Dec; 25(6 Suppl): 43-51. Review

Buckman R. How to Break Bad News. Baltimore, MD, Johns Hopkins University, 1992.

Coulehan JL, Platt FW, Egener B, Frankel R, Lin, C-T, Lown B, Salazar WH. "Let me see if I have this right...": Words that Help Build Empathy. Ann of Intern Med 2001; 135(3): 221-227.

Levinson W, Cohen MS, Brady D, Duffy FD. To Change or Not To Change: "Sounds Like you have a Dilemma". Ann of Intern Med 2001; 135(5): 386-391.

Lo B, Quill T, Tulsky . Discussing Palliative Care with Patients. Ann Intern Med 1999; 130: 744-749.

Maguire P. How to Avoid Conflicts with Patients and Families During End-of-Life Care. ACP-ASIM Observer, June 2000.

Nease Jr RF, Brooks W. Patient Desire for Information and Decision-Making in Health Care Decisions: The Autonomy Preference Index and the Health Opinion Survey. J Gen Intern Med 1995; 10: 593-600.

Platt FW, Gaspar DL, Coulehan JL, Fox L, Adler AJ, Weston WW, Smith RC, Stewart M. "Tell Me About Yourself": The Patient-Centered Interview. Ann Intern Med 2001; 134(11): 1079-1085.

Quill TE. Initiating End-of-Life Discussions with Seriously Ill Patients: Addressing "The Elephant in the Room." JAMA 2000; 284(19): 2502-2507.

Teno JM. Advance Directives for Nursing Home Residents: Achieving Compassionate, Competent, Cost-Effective Care. JAMA 2000; 283,11: 1481-1482.

Tulsky JA. Teaching Physicians to Deliver Bad News: Some Practical Advice. J Pall Med 1999; 1(4): 423-426.

White KR, Coyne PJ, Patel UB. Are Nurses Adequately Prepared for End-of-Life Care? J Nurs Scholarship 2001; 33: 2, 147-151.

Quality of Life

Byock IR, Merriman MP. Measuring Quality of Life for Patients with Terminal Illness: The Missoula-VITAS Quality of Life Index. Palliat Med 1998; 12(4): 231-244.

Cohen S, Mount BM, Strobel MG, Bui F. The McGill Quality of Life Questionnaire: A Measure of Quality of Life Appropriate for People with Advanced Disease. A Preliminary Study of Validity and Acceptability. Palliat Med 1995; 9: 207-219.

Cohen SR, Mount BM, Bruera E, Provost M, Rowe J, Tong K. Validity of the McGill Quality of Life Questionnaire in the Palliative Care Setting: A Multi-Centre Canadian Study Demonstrating the Importance of the Existential Domain. Palliat Med 1997; 11: 3-20.

Daaleman TP, Vandecreek L. Placing Religion and Spirituality in End-of-Life Care. JAMA 2000; 284(19): 2514-2517.

Diener E, Emmons R, Larsen R, Griffin S. The Satisfaction with Life Scale. J Personality Assessment 1985; 49(1): 71-75.

DiMatteo MR, Hays R. The Significance of Patients' Perceptions of Physician Conduct: A Study of Patient Satisfaction in a Family Practice Center. J Commun Health Fall 1980; 6(1): 18-34.

Dudley JR, Smith C, Millison MB. Unfinished Business: Assessing the Spiritual Needs of Hospice Clients. Am J Hosp Pall Care March/April 1995: 30-37.

Faber-Langendoen K, Lanken PN, for the ACP-ASIN End-of-Life Care Consensus Panel. Ann of Intern Med 2000; 133(11): 886-893.

Gill TM, Feinstein AR. A Critical Appraisal of the Quality of Quality-of-Life Measurements. JAMA 1994; 272(8): 619-626.

Leake R, Friend R, Wadhwa N. Improving Adjustment to Chronic Illness Through Strategic Self-Presentation: An Experimental Study on a Renal Dialysis Unit. Health Psych 1999; 18(1): 54-62.

McDowell I, Newell C. Measuring Health: A Guide to Rating Scales and Questionnaires. (AHCPR grant HS06206). New York: Oxford University Press, 1996.

Mozes B, Shabtai E. The Contribution of Personal Rating to the Clinimetric Functioning of a Generic Quality-of-Life Instrument. J Clin Epidemiology 1996; 49: 1419-1422.

Muldoon MF, Barger SD, Flory JD, Manuck SB. What are Quality of Life Measurements Measuring? Br Med J 1998; 316: 542-545.

Rummans TA, Bostwick JM, Clark MM. Maintaining Quality of Life at the End of Life. Mayo Clin Proc 2000; 75: 1305-1310.

Singer PA, Martin DK, Kelner M. Quality End-of-Life Care, Patients' Perspectives. JAMA 1999; 281: 163-168.

Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA. Factors Considered Important at the End of Life by Patients, Family, Physicians, and other Care Providers. JAMA 2000; 284(19): 2476-2482.

Steinhauser KE, Clipp EC, NcNeilly M, Christakis NA, McIntyre LM, Tulsky JA. In Search of a Good Death: Observations of Patients, Families and Providers. Ann Intern Med 2000; 132(10): 825-832.

Stewart AL, Greenfield S, Hays RD, Wells K, Rogers WH, Berry SD, McGlynn EA, Ware JE. Functional Status and Well Being of Patients with Chronic Conditions: Results from the Medical Outcomes Study. JAMA 1989; 262: 907-913.

Teno J, Stewart A. Quality of Life. [Literature review and bibliography.] In: TIME: Toolkit of Instruments to Measure End-of-life Care. Available on World Wide Web, http://www.chcr.brown.edu/pcoc/toolkit.htm as of February 1, 2002.

Van Campen,C, Sixma H, Friele RD, Kerssens JJ, Peters L. Quality of Care and Patient Satisfaction: A Review of Measuring Instruments. Med Care Res Review 1995; 52: 109-133.

Ware JE, Sherbourn, CD. The MOS 36-Item Short-Form Health Survey (SF-36): I. Conceptual Framework and Item Selection. Med Care 1992: 30: 473-483.

Ware JE, Snow KK, Kosinski M, Gander B. SF-36 Health Survey Manual and Interpretation Guide. Boston, M, The Health Institute, 1993.

Wilson IB, Cleary PD. Linking Clinical Variables with Health-Related Quality of Life. JAMA 1995; 273: 59-65.

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Promoting Excellence in End-of-Life Care is a National Program Office of The Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying persons and their families. Visit PromotingExcellence.org for more resources.

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