Promoting Excellence : ALS Report to the Field : References

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Annas, GJ. "Nancy Cruzan and the right to die." New England Journal of Medicine, 323: 670-673, 1990.

Bernat JL. "Ethical and legal issues in palliative care." Neurologic Clinics, 19(4): 969-987, 2001.

Bradley WG, Anderson FA, Bromberg MB, Yadollah H, Miller RG and Ross M. "Changes in management of ALS since Publication of AAN Practice Parameter: Evidence from the ALS Patient Care Database." Neurology, 58:A78, 2002.

Brooks BR, Lewis D, Rawling J, et al. "The natural history of amyotrophic lateral sclerosis." In: Motor Neuron Disease, Williams AC (ed.). London: Chapman and Hall Medical, 1994.

Buckman R. "Communication skills in palliative care: A practical guide." Neurologic Clinics, 19(4): 989-1004, 2001.

Cancer Pain Relief and Palliative Care, 1990. World Health Orgaization, Technical Report Series 804:1-75.

Carver AC, Vickrey BG, Bernat JL, Keran C, Ringel SP and Foley KM. "End-of-life care: A survey of US neurologists' attitudes, behavior, and knowledge." Neurology, 53(2): 284-293, 1999.

Education for Physicians on End-of-Life Care (The EPEC Project). Е EPEC Project, The Robert Wood Johnson Foundation, 1999.

Fried TR, Bradley EH, Towle VR and Allore H. "Understanding the treatment preferences of seriously ill patients." New England Journal of Medicine, 346(14): 1061-1066, 2002.

Ganzini L, Johnston W and Silveira M. "The final month of life in patients with ALS." Neurology, 59: 428-431, 2002.

Miller RG, Rosenberg JA and Gelinas DF, et al. "Practice parameter: The care of the patient with amyotrophic lateral sclerosis (an evidence-based review)." Neurology, 52(7): 1311-1323, 1999.

Mitsumoto H, Chad DA, Pioro EP (eds). Amyotrophic Lateral Sclerosis. Philadelphia: FA Davis, 1998.

Munsat TL, Andres PL, Finison L, Conlon T and Thidodeau L. "The natural history of motoneuron loss in amyotrophic lateral sclerosis." Neurology, 38: 409-413, 1988.

Oliver D, Borasio GD and Walsh D. Palliative Care in Amyotrophic Lateral Sclerosis. Oxford University Press, 2000.

Ringel SP, Murphy JR, Alderson MK, et al. "The natural history of amyotrophic lateral sclerosis." Neurology, 43: 1316-1322, 1993.

Roethlisberger FJ, Dickson W. Management and the Worker. Cambridge, Mass.: Harvard University Press, 1939.

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Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. Visit PromotingExcellence.org for more resources.

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