Promoting Excellence : Completing the Continuum of ALS Care : ALS Report to the Field


 · Executive Summary
> Report to the Field
 · Appendices

Foot Brace Illustration

Explanation of the Peer Group
 · Statement of Need
 · The Convening Process

 · Defining ALS
 ·  Issues in End-of-Life Care

 · Establishing the ALS Workgroup and
 · Defining the Aims of the Project
 · The Process
 · Conceptual Considerations in Defining End of Life Resources and Defining Optimal Care

Workgroup Findings and Recommendations to the Field
 · Psychosocial Care
 · Bereavement
 · Spirituality
 · Quality of Life
 · Caregiver Issues
 · Ethics
 · Communications and Decision Making
 · Access to Care
 · Cost of Care
 · Education

Symptom Management at the End of Life
· Respiratory Care
· Nutrition and Hydration
· Speech and Communication
· Depression and Pseudobulbar Affect
· Insomnia
· Pain
· Last Hours


ALS Peer Workgroup Members

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Meeting this challenge requires that health care providers review their own attitudes toward death and life, come to terms with their own mortality and take the necessary steps to address their own personal issues surrounding death and dying.

Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. Visit for more resources.

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