Promoting Excellence : Completing the Continuum of ALS Care : ALS Executive Summary


> Executive Summary
 · Report to the Field
 · Appendices

Group Therapy Illustration

 · Introduction & Methods
 · Workgroup Findings and Recommendations to the Field
   · Defining End of Life
   · Physicians' Perception of Own Mortality
 · Psychosocial Care
 · Bereavement
 · Spirituality
 · Quality of Life
 · Caregiver Issues
 · Ethics
 · Communications and Decision Making
 · Access to Care
 · Cost of Care
 · Education

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The ALS Peer Workgroup identified topics and issues specific to the end of life in ALS: general psychosocial care, bereavement, spirituality, quality of life, caregiver issues, communication skills, ethics, decision making, symptom management, access to care, costs of care and knowledge/education.

Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. Visit for more resources.

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